Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Sunday, 14 June 2020

Dig it up



 How does your garden grow?


Growing up in the ’70s in Brisbane, Australia in the backyard we had: a vegetable patch, compost heap, an incinerator and of course, a Hills Hoist.  It was a place to play backyard cricket, do gymnastics  or at least headstands, plant vegetable gardens and grow things like choko vines, Passionfruit, Paw Paws and Bowen Mangoes if you were lucky. My Parents love gardening,  when we were young, Mum  and Dad planted the front garden with annuals and roses, making a beautiful display outside and inside the house bunches of cut flowers were plentiful. Dad was always in the garden, he made a square shaped compost heap which provided organic matter for the  whole garden and  the rewards were plentiful, there was so much Parsley he supplied the local butcher with attractive garnishes for the shopfront. Radish were my favourite, so peppery and crunchy, the corn, lettuce, tomatoes and potatoes, growing well, just walk out to the garden so convenient. Watering was done with a garden hose and sometimes a sprinkler which in the summer, we loved to run through.

During the  perplexing COVID19 shutdown, we found a time to contemplate our surroundings and dream of a different way to live, an imminently more satisfying way to provide for ourselves. Spending time on enhancing our sub tropical garden and more time at home lead to planning a vegetable patch,  to grow our own produce has always been dream.

Wicking beds are water efficient gardening, drought resistant and a sort of upside down method of watering.
The hip height bay in our yard to provides a ledge and seating to tend the garden. This is imperative for me, living with  Parkinson's makes crouching down a difficult manoeuvre. Keeping everything at hand and being organised is vital.
Excited learning about new things.

What will we grow?

https://www.wickingbeds.com.au/video/







Monday, 18 May 2020




Kindness Rocks!

Kindness is doing something and not expecting anything in return. Kindness is respect and helping others without waiting for someone to help one back. It implies kindness no matter what.

It is lovely to be kind and to be the recipient of kindness. Kindness is a special concept ready to help you feel that warm inner glow of goodness and appreciation.

Why are people kind? Is it a soft heart? It could be because the need to feel powerful has gone and is replaced with respect affection and friendliness.

When kindness is present, ego is gone and good riddance. Ego is about self and being preoccupied mostly with the issues that affect oneself.

Being generous with ones time and spirit is a gift for modern times and something to marvel over, initially and then to accept what can be. Much too often in times past it was important to be here, there and everywhere.

A new friend finds joy in painting rocks and giving them, she places the rocks in an obvious public hiding spot or directly to the chosen recipient. The beautiful images that cover the rocks’ smooth surface are sweet and endearing. Just imagine finding a rock with a painting of a baby racoon with flowers on its head. What a gift this woman has to spread joy and happiness!

Recently, a painted rock was mysteriously left in my letterbox, it is decorated with magical swirling red patterns. Now the special gift is nestled in my Fairy Garden at the front corner of our house block. It is a wonderful feeling that someone has been so kind to do this.There are good people doing things that matter are all over the world. A passionate and talented creator of patchwork quilts is on a mission to make and donate to people affected in the tragic and horrific bushfires during the summer in Australia. A friend who is talented with computers, with an ear on the NDIS is helping people who are a little challenged with this field, this intangible gift is most thoughtful and appreciated. Helping others, time freely given and patience all make the world go around.This week is National Volunteers Week in Australia, it's the annual celebration to acknowledge the generous contribution of our nation's volunteers let us take the time to show our gratitude to the many people who choose to work for no pay. Check the website for events. www.volunteeringaustralia.org

Kindness Rocks! It is a thing!

Listen to the radio show live  Wednesday 20 May at 19:00 AEST on www.radioparkies.com 

Like DJ Madonna's Radio Show Facebook page

Lorraine Wilson

Painted by  Lorraine Wilson.




Carol Clupny and Charlie on the Tandem






DJ Madonna's Fairy Garden 
              

The recording of my radio show featuring Carol Clupny, Lorraine Wilson and Andy Butler originally broadcast 20-5-2020, enjoy with abandon.


https://www.mixcloud.com/RadioParkies_au/kindness-rocks-djmadonna-and-guests-on-radioparkiescom-20-5-2020-australia/

Friday, 1 May 2020

What the Dickens! I am back.....

What the Dickens! I am back.....

But for how long you are thinking?! Do enjoy it for what it is. 

It is, what it is.

Down an internet rabbit hole and  happened to stumble across my blog and thought why not crank it up again? 
Let me state to begin with, it still seems weird to say 'my blog' even in my head, it's a little like saying my Maserati or my Gucci handbag. It sounds so ostentatious!  The practice of writing thoughts and ideas helps to make sense of this crazy world we live in.  
How often will I write my blog? 
Perhaps a little more often than recently, which has been sporadic to say the least and piss poor to say it straight.

This July 12th will be 8 years, since I was diagnosed at 46 with Idiopathic Young Onset Parkinson's disease, let me break it down. Idiopathic - no known cause. Young Onset - diagnosed under 50. This will be three years after the cure was supposed to be found.
People said, "It's just around the corner", "it's in the labs now, in 5 years it will be on the market". 
Are drug companies interested in a cure, it seems too much money is made from the 10 million people worldwide living with Parkinson's (PLwP).

It is often said to me that the medication is so much better now. This is only uttered by people who have no idea.  The Gold Standard is a 50 year old drug, the more recent medications, agonists, were and still are akin to poison for some people, leading to impulsive behaviour that has wrecked many lives due to gambling, shopping, gaming, sex. 
"Agonists are like your best friend acting nice, but in the bigger picture they have an ulterior motive far more sinister than any benefit that the friendship could ever provide" - the words of someone who has been to hell and back and still climbing out of it.
"For some it works but in my opinion, structured social supports are required that extend way beyond what the medical profession can offer to monitor the participant. These supports need to look for the hidden signals as the participant can very easily deliberately hide the obvious signs. And there is a moral duty of care that isn’t being acknowledged, and those affected are too proud to publicly admit that they fell prey to the fiery forks of the devil disguised. This could never happen to me, I won’t be judged by my friends so I’ll keep it to myself"

The worldwide shortage of all forms of Sinemet has been going on for some time, it will continue to be in short supply until further notice. Sinemet is a widely used Parkinson's medication, marketed by Merck, Sharp & Dohme (Australia) who are keeping doctors informed. The shortage is due to a problem at the manufacturer's level. The patients prescribed this medication are advised to find a substitute. 

This will not be explained away with a nice ending. 

It is what it is. 


My current work in progress, The Cornflower Quilt it is made in the English Paper Piecing method and designed by Jodi Godfrey.  A long term project perfect for the Covid19 lockdown, getting close to one quarter way there.

Thursday, 1 November 2018

Hello is there anybody in there?


Hello,  is there anybody in there?

Just nod if you can hear me...


A knock at the door.

In my house, comfortably numb, preparing for the Wednesday night radio show, without a  thought of the repercussions,  I answered the door.


A cute little girl in a Frozen costume, her brother also wearing a frozen costume with Grandad and Grandma beaming brightly in the  front yard. They are all smiling and happy, the grandma is a recognisable Stafford identity. The group is obviously enjoying Halloween in Stafford, Trick or Treating in a neighbourhood where it is not really done. For the last 25 years it has been an older persons area, we were the young family. Years ago when my kids wanted to do Trick or Treating, I gave a warning to the elderly ladies around the corner, and a sneaky packet of wrapped lollies also.


Uh oh!! It is the 31st of October and in many places around the world this is happening. On the streets around here, the responses appear varied, a few houses are decorated in the Halloween colours of orange green and black with a liberal dose of store bought spray on cobwebs and a bit of crime tape. Where does that come from?


In general, the idea is if you want Trick or Treaters to visit, you turn your front light on, round these parts anyway. People actually sit in the darkness so as not to be visited by these types. Okay so I'm a nice lady, but a little forgetful sometimes, we had no wrapped candy, lollies, chocolates, eucalyptus, Fishermans Friend's nothing, zilch. Except fruit



https://www.mixcloud.com/RadioParkies_au/dj-madonna-radio-show-31-102018-on-radioparkiescom/



Sunday, 3 September 2017



_ _ it just got real     Why? Read on                                                    

Parkinson’s is a complex disease, here are some ways  to manage Parkinson’s symptoms. Note, the word is managing not reversing, arresting, or stopping.   We live in a big country, even though Australia has a good health care system there are many regional areas without Pd specialists or Pd nurses. Self care is necessary,  in one year, most People living with Parkinson’s spend 1 hour in neurological healthcare and 8,765 hours in self-care. So get into life and learn about how to monitor your Parkinson’s. No one else will be doing it for you. 
Be Master of your own ship.
Some things I have found:

Exercise – Walking with BIG movements, PDWarrior, Dance for Parkinson’s, Pedaling for Parkinson’s.  Exercise is medicine.
Research – being involved in clinical research programs formulates relationships with health professionals whose innovative ideas assist PLwP. 
Activities and fun – hobbies, creative interests, weekly groups, learning opportunities. Art and crafts, painting, woodwork. Mental health is greatly improved with participation in choirs, group projects and being creative.  Music is a definite mood changer; radioparkies.com has opened a world of opportunities.
Meditation and mindfulness – Being present in the moment and focus on the smaller things that sometimes go unnoticed, like the trees outside the window when you are washing up.  Setting aside time to concentrate on what is happening now, the breath. Drawing and colouring, puzzles and gardening.

We need choice
Introducing: Parkinson’s Fighters United Inc.
Bringing Non Contact Boxing and other activities to Brisbane’s Parkinson’s population.
A newly formed Not For Profit Organization whose mission is to improve the lives of Queenslanders living with Parkinson’s Disease through the provision of a targeted non-contact boxing program.

Where did this idea come from?
Back in 2013 I visited the World Parkinson’s Congress in Montreal, having applied for and awarded a travel grant to assist my Poster Presentation in the category of Living well with Parkinson’s. My paper “Accessibility to Parkinson’s Specific Exercise” recognized the shortage of affordable Parkinson’s specific exercise programs and activities available in Brisbane. Being able to get out of the house and wanting to participate only to find that exercise groups are oversubscribed and at inappropriate facilities e.g., hospitals, is a barrier to better health.
On the way home through Dallas I attended a Parkinson’s specific Non Contact boxing class at Fort Worth run by Paulie Ayala, a boxing champ from USA.
In 2016, the 4th World Parkinson’s Congress in Portland, Rock Steady Boxing Non Contact Boxing was very popular in the Renewal Room. Matt and I were part of a large group of PLwP, supporters, Physios etc. all getting sweaty whilst punching, ducking and weaving. For me it was one of the highlights of the WPC, feeling the Parkie power, seeing the smiles on all the faces and feeling the sense of belonging.
Back in Brisbane with renewed energy and increased verve to make it a reality for people with Parkinson’s here. The barriers that existed to this becoming reality fell in July, resigning from a role that I had no longer any patience for. Making way for positivity and hope. The Team that is making it real is a group of women with Pd; they care about making change happen and want more choice. Striving for better health and providing opportunities for improved outcomes for Queenslanders’ with Parkinson’s.  It is refreshing to hear YES!!

More about Parkinson’s Fighters United Inc. as the group gets into action. The group is an Incorporated Association; a launch party will be happening soon, the PFU Inc logo is being created, a location announcement, public awareness and publicity.



Tuesday, 8 November 2016


Resilience NEVER goes out of style


My favourite cricketer, Australian Mitchell Johnson, is a man of style and character, and has just released  his book 'Resilient'.  Mitchell Johnson's story is one of talent, courage, determination and heart. All those qualities will see us through trials and tribulations, ups and downs, talking about the weirdness of this life helps to make things bearable. He is a former shy guy sharing  stories of inspiring people that have been a part of his life and sporting photos will accompany it. I really never cared for cricket before the Summer of 2013-2014  Ashes series in Australia when Johnson dominated against the English  team. 

Bethany Hamilton is an American professional surfer who survived a 2003 shark attack in which her left arm was bitten off, she has successfully returned to competitive surfing.  Hamilton wrote about the experience in the 2004 autobiography Soul Surfer: A true story of Faith, Family.... the feature film Soul Surfer was released in April 2011.

Nick Vujicic is an Australian motivational speaker born with phocomelia, a rare disorder characterised by the absence of legs and arms, he has overcome his disability to live a rich and fulfilling life.  Becoming a role model for anyone seeking true happiness, the book Life Without Limits, 2010 shares his amazing outlook.

What do these people have in common....  attitude and resilience and a lot of 'positive self talk' too.

radioparkies.com

I'm  DJMadonna  on the worldwide internet radio station for people with Parkinson's
Tonight the theme for my radio show is Americana, go to the above website and listen live at 20:00 
Australia Eastern Standard Time. Each Wednesday a different theme and a talk or an interview with someone with Parkinsons or associated with Pd, tonight my special guest is Roger Halleen, President of the Illinois chapter of APDA. It's the last of my interviews recorded at the recent World Parkinson Congress. 

I have had a break from writing here, if you want to catch some of the other radioshows' please check them out on.







Saturday, 27 August 2016

The countdown to the World Parkinson Congress is on!


The planning committees have fully prepared an amazing event "Bringing the Parkinson's Community Together" is the goal and with that in mind, advancing science, promoting community and inspiring hope will be the outcomes. The committees are numerous: Steering, Program, Advocates for Parkinson, Fundraising, Local Organizing, Organizations, Communications, WPC 2016 Ambassadors and the various sub committees. The WPC are designed and held every three years, it provides an international forum for learning about and discussing the latest scientific discoveries, medical practices and initiatives related to PD. Bringing the community together in order to advance the worldwide dialogue and ultimately find the cure for this disease. This is from the program for the WPC. 

It makes you want to go? Book those tickets. Not much funds? Plan for next time, perhaps it will be closer to home?

I am going!

Yes indeed. This will be my second WPC, in 2013 it was in Montreal, I submitted an abstract in the Living Well with Parkinsons category of the Poster display and was fortunate to receive a travel grant from the WPC. My three daughters volunteered at the congress. This year I am the beneficiary of a travel grant again, my paper called Webradio station Radioparkies.com entertaining and informing people with Parkinson's will be at the Poster display at Exhibit Hall B Level 1, Poster Board number 40.04, for the duration of the Congress. I will be at the poster 11:30am - 1:30 pm Friday, September 23 to meet delegates and answer questions. The poster area is one of my favourite places. 
The Living with PD Topics: public education or awareness programs; Gov advocacy, campaigns, public policy, Living well with PD, Advancing research via fundraising, trials and  educational campaigns. All abstracts selected for display will be published in the journal supplement and CD.
The scientific topics: Basic Science, Clinical Science and Comprehensive Care cover numerous areas and all abstracts will be published in the journal supplement and CD. Thank you to the generous, wonderful people and organizations that make funds available for travel grants. 

Radioparkies DJ's are going too!

A collection of DJ's will be in the Exhibitors Hall talking about Radioparkies.com, how to use the website, listen to the radioshows, conducting interviews and broadcasting live from the WPC!! 
Meet your favourite DJ's at Booth 820. Who will be there? Laura, Jimmy, Pete, Andy, Dan, Chrissy, David, Madonna, Andre, Tanna, Chris and Matt. Please come and say hi!

Let your voice be heard.....

Thats the motto of Radioparkies. If you are a PWP or in anyway associated with Parkinson's, I want to hear from you, please be a special guest on my weekly radio show. It's important to share your perpectives, interests, passions and ideas. Why? Because you are great! The list of people who have been on my show is the 'who's who' of amazing, you are invited to be a part of it too. Send a message and lets do this.

Fridays show
Special Guest Carol Wood and I talked at the beach, Queen dominated the Q list.
https://www.mixcloud.com/radioparkieswebradio/radioshow-dj-madonna-on-26-08-2016/



Friday, 1 July 2016

Happy Friday

Happy New Year! With the new year comes new beginnings, another chance to start anew. Have a look at life in a fresh way. Planning a NFY resolution? I am!  Here it is......Get more sleep 

The takeaway message from Linda Rondstadt in the interview below is really vital for everyone and especially for people living with Parkinson's. 
The recording of Friday's show is below. 

Further to what was mentioned in the interview,  LSVT BIG AND LOUD are treatments that specifically address the freezing symptoms that can occur with speech, walking and other activities of daily living.
There is  free webinar opportunity coming up on Wednesday 13 July 2016, give it a go.

Smaller steps and shuffling walk are classic traits of Parkinson's, it is possible to retrain your walking style. There are videos showing the exercises for LSVT BIG available on YouTube, it's all about big movements: big swinging arms, long steps and striking the heal first when walking. 
A soft voice is also very common with Parkinson's, LSVT LOUD is about speaking loudly and using the voice with intent, projecting the voice and making your voice be heard. 



Next Wednesday on my Radioparkies radio show

Show Tunes! Yes!  Special guest is Mark Ereira, Sydney

Get ready to sing along to your favourite songs from musicals old and new. 

Be transported to another place and time......

Send your requests now to 


Let your your voice be heard! 


Friday, 24 June 2016

Alphabet Songs



The I List

https://www.mixcloud.com/radioparkieswebradio/radioshow-dj-madonna-on-24-06-2016/

On the playlist, 'I List', songs and artists beginning with I.....I believe I can fly, Imagine, I need you tonight, I still haven't found what I'm looking for.

New segment - Joke of the week as told by Matt Brady

Talk by Janice Rowan, optimist, children's storyteller, parky poet.


Apps to try.

Medicine X Parkinson's explained - information for newly diagnosed

Charity Miles - exercise tracker

Medisafe - medication reminder


Be a guest on my show, everyone has a story to share, it's a great experience. Send an email to parkies@live.be

Let Your Voice Be Heard

www.radioparkies.com

Friday, 17 June 2016

The 'H List'







Recording of the Friday morning show.

Friday morning 8am - 9am, Australia Eastern Standard Time. There is a cluster of radioparkies DJs bringing fabulous shows. This week five DJs in a row starting with DJSpilly Belgium at 5am, DJDavid UK at 6am, DJJimmy USA at 7am, DJMadonna AUSTRALIA at 8am, DJLaura USA at 9am.

https://www.mixcloud.com/radioparkieswebradio/radioshow-dj-madonna-on-17-06-2016/

Playlist

Hanson, Harlem Globetrotters, Hallelujah, Happy, Heart of Glass, Help is on the Way, Hey Ya!, Here Comes Your Man, etc.

Talk by Dave Morse - shipwright, Photographer, legend

Let Your Voice Be Heard!

Enjoy your weekend.

 P.S. What's the collective noun for a group of DJs? A deck? A studio? A collections?

Thursday, 16 June 2016

Double Whammy Wednesday


Recording of the DWW radio show

Radioparkies.com is a web radio station powered by people with Parkinson's for people living with Parkinson's, their family and friends. Music, local PD news, talks by people living with Pd or associated with Parkinson's.

Let Your Voice Be Heard

https://www.mixcloud.com/radioparkieswebradio/radioshow-dj-madonna-on-15-06-2016/



Playlist
Etta James: Pushover, Finders Keepers
Van Morrison: Bright Side, Brown Eyed Girl
Neil Diamond: Song Sung Blue, Beautiful Noise
Talk by Dave Morse
Amy Winehouse: Valerie, Rehab
Pete Murray: Opportunity, So Beautiful
Adele: Hello, Skyfall
Coldplay: Yellow




Sunday, 12 June 2016

Djmaddyb is in da house!

Testing testing....123

Every week I broadcast two radio shows via the web based radio station  www.radioparkies.com
It's the only radio station in the world powered by people with Parkinson's for people with Pd, their friends and family. Radioparkies.com is about entertainment and information for people living with Parkinson's and it's based in Belgium. The music broadcast is 24 hours/7days and scheduled DJ's present radio shows at specific times.

My shows are on Wednesday 20:00hrs - 21:00 Australian Eastern Standard Time and Friday 08:00hrs, special guests on the show, give a short insight into their lives, perspectives and adventures as People Living With Parkinson's or people associated with Parkinson's i.e. health professionals, PD organisations CEO's, researchers, Professors. Would you like to be a special guest on my show? Send me a message or email.

I like many styles of music, anything and everything from Soul, Alternative, Reggae, Rock, Blues, Jazz, Indie Folk Music and present the shows with different themes. Previous themes have been: Family's of Music, Show Tunes, Reconciliation Week, One Hit Wonders, UK music of the 70's...

News of Parkinson's events local and global, information and chat

Join me this week for....

Wednesday 20:00hrs - 'Double Whammy Wednesday' and special guest Dave Morse.

Friday 08:00hrs - 'The H List' Songlist is all beginning with H or artists beginning with H.

Listen live  www.radionomy.com/en/radio-parkies

Contact me djmadonna.radioparkies@gmail.com

Let Your Voice Be Heard